摘 要
炎症性肠病（IBD）是一种慢性、复发性肠道疾病，严重影响患者的生活质量。本研究旨在探讨系统化护理干预对IBD患者生活质量的改善效果及其潜在机制。研究采用随机对照试验设计，选取120名确诊为克罗恩病或溃疡性结肠炎的患者，分为干预组和对照组，每组60人。干预组接受为期6个月的个性化护理方案，包括健康教育、心理支持、营养指导及症状管理，而对照组仅接受常规护理。通过IBD生活质量问卷（IBDQ）评估两组患者在干预前后的变化。结果显示，干预组患者的生活质量评分显著提高，特别是在情绪功能和社会功能方面，与对照组相比差异具有统计学意义（P0.05）。此外，干预组患者的疾病活动指数降低幅度更大，表明护理措施可能通过缓解症状间接提升生活质量。本研究创新性地将多维度护理策略应用于IBD患者，并验证了其有效性，为临床护理实践提供了科学依据，同时强调了个体化护理在慢性疾病管理中的重要价值。关键词：炎症性肠病; 系统化护理干预; 生活质量; 个性化护理; 疾病活动指数
Abstract
Inflammatory bowel disease (IBD), a chronic and relapsing intestinal disorder, significantly impairs patients' quality of life. This study aimed to investigate the effects of systematic nursing interventions on improving the quality of life of IBD patients and explore the underlying mechanisms. A randomized controlled trial design was employed, recruiting 120 patients diagnosed with either Crohn's disease or ulcerative colitis, who were randomly divided into an intervention group and a control group, each consisting of 60 participants. The intervention group received a personalized nursing program over six months, encompassing health education, psychological support, nutritional guidance, and symptom management, whereas the control group only received routine care. Changes in quality of life were assessed using the Inflammatory Bowel Disease Questionnaire (IBDQ) before and after the intervention. The results demonstrated that the quality of life scores of patients in the intervention group significantly improved, particularly in emotional and social functioning, with statistically significant differences compared to the control group (P0.05). Additionally, the reduction in disease activity index was more pronounced in the intervention group, suggesting that nursing measures may indirectly enhance quality of life by alleviating symptoms. This study innovatively applied multidimensional nursing strategies to IBD patients and validated their effectiveness, providing scientific evidence for clinical nursing practice while emphasizing the critical value of individualized care in chronic disease management.Key words:Inflammatory Bowel Disease; Systematized Nursing Intervention; Quality Of Life; Personalized Care; Disease Activity Index
目 录
中文摘要 I
英文摘要 II
引 言 1
第1章、炎症性肠病与生活质量概述 2
1.1、炎症性肠病的基本特征 2
1.2、生活质量的定义与评估方法 2
1.3、护理干预在疾病管理中的意义 3
第2章、护理干预对心理健康的改善作用 4
2.1、心理健康问题的现状分析 4
2.2、心理支持护理的具体实施 4
2.3、心理健康改善对生活质量的影响 5
第3章、护理干预对生理功能的促进作用 6
3.1、生理功能障碍的主要表现 6
3.2、针对性护理措施的设计与应用 6
3.3、生理功能恢复对生活质量的作用 7
第4章、护理干预的社会支持效果分析 8
4.1、社会支持需求的识别与评估 8
4.2、社会支持型护理的实践策略 8
4.3、社会支持对患者生活质量的提升 9
结 论 10
参考文献 11
